Project references

The references below helped to provide the evidence base for Constellation Project Australia

  1. Cancer in NSW: Incidence and Mortality Report 2006. 106-109.

  2. Barrera, M., O'Connor, K., D'Agustino, N. M., Spencer, L., Nicolas, D., Jovcevska, V., et al. (2009). Early Parental Adjustment and Bereavement after Childhood Cancer Death. Death Studies, 33(6), 497-520.

  3. Beale, E. A., Baile, W. F., & Aaron, J. (2005). Silence Is Not Golden: Communicating With Children Dying From Cancer. J Clin Oncol, 23(15), 3629-3631.

  4. Bowlby, J. A. (1969). Attachment and loss: Vol. 1. Attachment (Vol. 1). New York.

  5. Charles, C. (2007). Kids Grieve Too: Supporting Bereaved Children in a Group Setting. Grief Matters( Winter 2007), 32-35.

  6. DeCristofaro, J. (2007). Grieving Together: The Dougy Center Peer Support Group Model. Grief Matters(Winter 2007), 42-44.

  7. Faulkner, A. (2004). The ethics of survivor research: Guidlines for the ethical conduct of research carried out by mental health service users and survivors. UK.

  8. Forte, A. L., Hill, M., Padzer, R., & Feudtner, C. (2004). Bereavement care interventions: a systematic review. BMC Palliative Care, 3(3).

  9. Foster, T. L. (2008). A mixed method study of continuing bonds: Maintaining connections after the death of a child. Vanderbilt University, Nashville, Tennessee.

  10. Freud, S. (1961). Mourning and Melancholia. In J. Strachey (Ed.), The standard edition of the complete psychological works of Sigmund Freud (pp. 243-258). London: Hogarth Press.

  11. Gibbons, M. B. (2001). Psychosocial aspects of serious illness in childhood and adolescents: curse or challenge. In A. A. Dailey & S. Zarbock (Eds.), Hospice care for children (pp. pp. 49-67). New York: Oxford University Press.

  12. Haber, M. (2010). Children's Cancer Institute Australia: Message from Executive Director.   Retrieved 22nd January, 2010

  13. Henderson, C. (2001). Losing Malcom: A Mother's Journey Through Grief. Mississippi: University Press of MS.

  14. Himelstein, B. P., & al.", e. (2004). Medical Progress: Pediatric palliative care. New England Journal of Medicine, 250, 1752-1762.

  15. Hogan, N., & DeSantis, L. (1992). Adolescent Sibling Bereavement: An Ongoing Attachment. Qualitative Health Research, 2(2), 159-177.

  16. Hogan, N., & DeSantis, L. (1994). Things That Help and Hinder Adolescent Sibling Bereavement. Western Journal of Nursing Research, 16(2), 132-153.

  17. Hogan, N. S., & DeSantis, L. (1996). Basic constructs of a theory of adolescent sibling bereavement. In D. Klass, P. R. Silverman & S. L. Nickman (Eds.), Continuing Bonds: New understandings of grief (pp. 235-254). Philadelphia: Taylor and Francis.

  18. Hotch, P. (2001). No Longer Time. Albuquerque, NM: La Alameda Press.

  19. Kellehear, A. (2000). Spirituality and palliative care: a model of needs. Palliative Medicine, 14(2), 149-155.

  20. Khubler-Ross, E. (1969). On death and dying. New York: Macmillan.

  21. Kissane, D. (2005). A challenge for palliative medicine: Bereavement Care. European Journal of Palliative Care, 12, pp 19-25.

  22. Klass, D., Silverman, P. R., & Nickman, S. L. (1996). Continuing bonds: New understandings of grief. Washington, DC: Taylor and Francis.

  23. Kreicbergs, U. C., Lannen, P., Onelov, E., & Wolfe, J. (2007). Parental Grief After Losing a Child to Cancer: Impact of Professional and Social Support on Long-Term Outcomes. J Clin Oncol, 25(22), 3307-3312.

  24. Levetown, M., Liben, S., & Audet, M. (2004). Palliative care in the paediatric intensive care unit. In B. S. Carter & M. Levetown (Eds.), Palliative care for infants, children and adolescents. Baltimore: John Hopkins University Press.

  25. Lobb, E. A., Clayton, J. M., & Price, M. A. (2006). Suffering Loss and grief in palliative care. Australian Family Physician, 35, 772-775.

  26. Martinson, I. M., & Campos, R. G. (1991). Adolescent bereavement: Long term Responses to a Sibling's Death from Cancer. Journal of Adolescent Research, 6(1), pp 54-69.

  27. Mather, M. A., Good, P. D., Cavenagh, J. D., & Ravenscroft, P. J. (2008). Survey of bereavement support provided by Australian palliative care services. Medical Journal Australia, 188(4), pp 228-230.

  28. McGrath, P. (2003). Living Well with Grief: Insights on Bereavement Support. Austral-Asian Journal of Cancer, 2(3), pp 225-233.

  29. Middleton, W., Raphael, B., & Burnett, P. (1998). A Longitudinal study comparing bereavement phenomena in recently bereaved spouses, adult children and parents. Australia and NZ Journal of Psychiatry, 32, pp 235-241.

  30. Morawetz, D. (2007). What works in grief counselling? US Evidence and Australian Experience. Grief Matters, Summer 2007, 57-59.

  31. Orbach, I. (1988). Children who don’t want to live: understanding and treating the suicidal child. San Francisco: Jossey-Bass.

  32. Osterwers, M., Solomon, M., & Green, M. (1984). Bereavement reactions consequences and care. Washington DC: Committee for the Study of Health Consequences of the Stress of Bereavement.

  33. Parkes, C. M. (1993). Bereavement as a psychological transition: Process of adaptation to change. In M. Stroebe, W. Stroebe & R. Hannason (Eds.), Handbook of Bereavement: Theory, research and intervention (pp. 91-101). Cambridge UK: Cambridge University Press.

  34. Parkes, C. M., Laugani, P., & Young, B. (1997). Death and bereavement across cultures. London, UK: Routledge.

  35. Patterson, P., & Rangganadhan, A. (2007). The needs of young people who have lost a sibling or parent to cancer: Report on the CanTeen National Member Survey for the bereaved sibling and bereaved offspring members: CanTeen Australia.

  36. Perreault, Y. (2007). The presence of absence: A research study examining experiences of AIDS Bereavement. Royal Roads University. Canada

  37. Ponzetti, J., & Johnson, M. (1991). The forgotten grievers: Grandparents responses to the death of grandchildren. Death Studies, 15(2), pp 157-167.

  38. Rando, T. A. (1986). Parental loss of a child: Research Press Co.

  39. Rando, T. A. (1993). Treatment of complicated mourning. Champaign, I L: Research Press.

  40. Reed, M. L. (2000). Grandparents cry twice: Help for bereaved grandparents. Amityville, N.Y.: Baywood.

  41. Reed, M. L. (2003). Grandparents Grief- Who is listening? Retrieved 23.07.09, from The Association for Death Education and Counselling:

  42. Rees, W. D. (1997). Death and Bereavement: The psychlogical, religious and cultural interfaces. London, UK: Whurr Publishers Ltd.

  43. Relf, M., Machin, L., & Archer, N. (2008). Guidance for bereavement needs assessment in palliative care. In H. t. Hospices (Ed.) (pp. 1-21): Help the Hospices.

  44. Roberts, S., & Long, T. (2007). Support needs of parents who have lost a child to cancer. Paper presented at the RCN Research Society.

  45. Sandler, I. N., Wolchik, S. A., & Ayers, T. S. (2008). Resilience rather than recovery: a Contextual Framework on Adaptation Following bereavement. Death Studies, 32(1), pp59-73.

  46. Schuchter, S. R., & Zisook, S. (1993). The normal course of grief. In M. S. Stroebe, W. Stroebe & R. O. Hanson (Eds.), Handbook of Bereavement: Theory, research and intervention (pp. 23-43). Cambridge , UK: Cambridge University Press.

  47. Silverman, P., & Nickman, S. L. (1996). Children's construction of their dead parents. In D. Klass, P. Silverman & A. L. Nickman (Eds.), Continuing bonds: New understandings of grief. Philadelphia: Taylor and Francis.

  48. Silverman, P. R. (1969). The Widow to Widow Programme: An experiment in Preventative Intervention. Mental Hygiene, 53(3), 333.

  49. Silverman, P. R. (2001). Living with Grief, Rebuilding a World. Innovations in End of Life Care, 3(3), 1-6.

  50. Stebbins, J., & Batrouney, T. (2007). Summary Report: Beyond the Death of  a Child, Social impacts and economic costs of the death of a child. Canterbury, Victoria: The Compassionate Friends Victoria Inc.

  51. Stroebe, M., & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23, pp. 197-224.

  52. Stroebe, M., Schut, H., & Stroebe, W. (2005). Attachment in coping with bereavement. Review of General Psychology, 9, 48-66.

  53. Worden, J. W. (1991). Grieving a loss from AIDS. In A. O. Amenta & C. B. Tehand (Eds.), AIDS and the Hospice Community (pp. pp. 143-150). New York: Harrington Park Press.

  54. Worden, J. W. (1996). Children and Grief when a parent dies. New York: Guildford Press.